We want to hear from you!

Every story matters — especially yours. 💙

At RareDNA Foundation, we know that real change begins with real stories. By sharing your journey, you help raise awareness, inspire others, and guide the future of care and research for those affected by rare and ultra-rare genetic heart disorders.

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Your experiences — the challenges, the triumphs, the lessons — remind us all why every moment matters. Together, we can turn awareness into action and make a lasting impact for families everywhere.