OUR MISSION

Mission Statement

RareDNA Foundation is dedicated to improving outcomes for individuals and families affected by rare genetic heart disorders by advancing Awareness, Access, and Action. We increase awareness among patients, families, medical professionals, and the public; provide education and resources to support diagnosis and care; support scientific research; and advocate for earlier and more effective diagnostic pathways, giving families the knowledge, connections, and care they need when every moment matters.

Vision Statement

To ensure every individual affected by a rare genetic heart disorder is diagnosed early, has access to the care they need, and benefits from advances in research and medical knowledge.